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ALS Network

Congress Passes ACT for ALS Reauthorization, Extends Programs to 2031

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Congress Passes ACT for ALS Reauthorization, Extends Programs to 2031

Los Angeles – – September 29, 2026 -- Congress has passed the Accelerating Access to Critical Therapies (ACT) for ALS Reauthorization Act of 2026 (H.R. 8205), sending the bipartisan bill to the President's desk just two days before the underlying program was set to expire on September 30, 2026.

Senate approval follows House passage, clearing the path for a presidential signature

The legislation cleared the U.S. House of Representatives before the Senate gave final approval, moving the bill to the President for signature. Once enacted, the law will extend core ACT for ALS programs through 2031, continuing federal support for ALS research infrastructure and expanded access to investigational therapies.